CROSBY TOWNSHIP, Ohio (WKRC) – A local man is putting his pedaling skills to work for a good cause. He’s biking for the rare disease epidermolysis bullosa, or EB. He is the great uncle to two young ...
Epidermolysis Bullosa, also colloquially known as butterfly skin disease, a rare genetic condition that makes your skin very fragile. While the symptoms usually show up in babies or young children, ...
BREWER, Maine — A community of friends and strangers is rallying behind a Brewer family after their baby daughter, Elliana Campbell, died from a rare and incurable skin disease called Epidermolysis ...
Patients with severe dystrophic epidermolysis bullosa, or EB, have skin so fragile, the slightest touch can lead to blistering and, eventually, large, open wounds that never heal, causing immense pain ...
Patients with the most severe form of a certain inherited disease have skin that is susceptible to wounds, some that never fully heal. For years, the only treatment was supportive care, including ...
Tayma struggles with the most severe version of Epidermolysis Bullosa, also known as butterfly disease, a rare disorder that causes skin to blister and crack Zineb Laalej Zineb Laalej tells PEOPLE ...
BOSTON--(BUSINESS WIRE)--Please replace the release with the following corrected version due to revisions to the second and fourth bullet points in the body of ...
ROCK4EB! with YOU AND ME (PINK + DALLAS GREEN), JIM JEFFERIES, BILLY HARRIS, AND JUDD APATOW AT EBMRF BENEFIT. This year’s star-studded Rock4EB! concert for epidermolysis bullosa was a success. On ...
Please provide your email address to receive an email when new articles are posted on . A cell-based, gene therapy skin graft healed large chronic wounds for patients with epidermolysis bullosa. The ...
Skin grafts genetically engineered from a patient's own cells can heal persistent wounds in people with an extremely painful dermatologic disease, a Stanford Medicine-led clinical trial has shown. The ...
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